So we got some new news on Joey...they have changed his diagnosis to Tay Sachs. Tay Sachs is very similar to Canavan's, except that the life expectancy of a baby with Tay Sachs is usually around 3-5 years.
I don't really have any new information, but the National Tay Sachs and Allied Disesase website has ton's of good info. www.ntsad.org.
We are really looking forward to Joey's birthday party on 5/3 and his actual birthday on 5/5. We can't wait to celebrate this huge milestone!
Love to all,