Wednesday, April 23, 2008

New News on Joey


So we got some new news on Joey...they have changed his diagnosis to Tay Sachs. Tay Sachs is very similar to Canavan's, except that the life expectancy of a baby with Tay Sachs is usually around 3-5 years.

I don't really have any new information, but the National Tay Sachs and Allied Disesase website has ton's of good info.

We are really looking forward to Joey's birthday party on 5/3 and his actual birthday on 5/5. We can't wait to celebrate this huge milestone!

Love to all,

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